Australian huntington disease association (National)




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títuloAustralian huntington disease association (National)
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INTERNATIONAL HUNTINGTON ASSOCIATION




ADDRESSES MEMBER COUNTRIES AND CONTACTS – UPDATE 2 January 2013

FOR USE IN- AND OUTSIDE THE IHA
ARGENTINA

Asociacion Para el Apoyo a los Enfermos de Huntington (APAEH)

Direccion Concepcion Arenal 2478-2P. “B”

Ciudad Autonoma de Buenos aires – Argentina

Presidente: Roberto E. Biason

Tel: Celular 5411-155-110-5086

Tel: 5411-4855-3887

Email : info@huntingtonargentina.com.arr

Website : www.huntingtonargentina.com.ar

CONTACTS :
DR. FREDERICO MICHELI

HOSPITAL DE CLINICAS JOSÉ DE SAN MARTIN

JUNCAL 1695 5J, 1062 BUENOS AIRES, ARGENTINA

Tel: 54-1-4812 5732; FAX: 54-1-4811 3076, tel home: 54-1-4804 6676

Mobile Phone: 54-154-579 8371

Email: fmicheli@fibertel.com.ar
DR. MARCELLO MERELLO

DEPT MOVEMENT DISORDERS

MONTANESES 2325, 1428 BUENOS AIRES, ARGENTINA

Tel:54-11-4788 3444; fax: 54-11-4784 7620; tel home: 54-11-4393 5806

Email: mmerello@fleni.org.ar
DR GUILLERMO ZEPPA

NEUROLOGY SERVICE, HOSPITAL PRIVADO DE CORDOBA

NACIIONES UNIDAS 346, 5016 CORDOBA, ARGENTINA

Tel: 54-351-468 8216; fax: 54-351-468 8272; Tel home: 54-351-481 7404

Email: gzeppa@radar.com.ar

DR EMILIA MABEL GATTO

INSTITUTO DE NEUROCIENCIAS

GUARDIA VIEJA 4435 CIUDAD AUTONOMA DE BUENOS AIRES

1428 BUENOS AIRES, ARGENTINA

Tel: 54-11-4867 7705/54-11-4781 8660; fax: 54-11-5371 3494, tel home: 54-11-4785 3097

Email: emiliagatto@fibertel.com.ar

ga_mem@yahoo.com
DR OSCAR S. GERSHANIK

DIRECTOR EXTRAPYRAMIDAL DISEASES SEC.

FUNDACION FAVALORO – DPTO NEUROCIENCIAS

Av Belgrano 1746, (C1093AAS) 1221 BUENOS AIRES, ARGENTINA

Tel: 54-11-4378 12200/1300/1400

Email: gersh@movi.com.ar
DR MANUEL FERNANDEZ PARDAL

HOSPITAL BRITANICO DE BUENOS AIRES

Pedriel 74 Ciudad Autonoma de Buenos Aires

Tel: 00-54-11-4304 1081

Email: mferpardal@hotmail.com

Website: hospitalbritanico.org.ar
AUSTRALIA

AUSTRALIAN HUNTINGTON DISEASE ASSOCIATION (National)


385 Ipswich Road, Postbox 635

Annerley Q4103 Australia

tel: 61 - 8 – 8271 2821; fax: 61 -8 – 8271 2821

Email: Gerald.doyle@bigpond.com

Website Australia National: www.huntingtonsaustralia.asn.au
Website South Australia: www.huntingtonssa.org

Website New South Wales: http://www.ahdansw.asn.au

Website Victoria: www.huntingtonsvic.org.au

Website Western Australia: http://www.huntingtonswa.org.au

Website Queensland: http://www.huntingtonsqld.com

Website Tasmania: www.huntingtonsaustralia.asn.au/tasmania

AUSTRIA
ÖSTEREICHISCHE HUNTINGTON HILFE

MR KURT ZWETTLER

SIBELIUSSTRASZE 9/3/35, 1100 VIENNA, AUSTRIA

tel: 43-1-6150 265

Email : shg-huntington-wien@gmx.at


Website : www.huntington.at
Huntington Hilfe Linz 

Ernst Aigner

Email : ernst.aigner@ing-aigner.at
Huntington Hilfe Graz
University Clinic of Psychiatry Karl Franzens

Auenburgerplatz 22, 8036 Graz, Austria

Tel : 43-316-3858 1612

Fax : 43-316-3853 5561

Email  medniki@gmx.at

Huntington Hilfe Tirol

Mrs Andrea Aichrainer

Ranggerweg 8/11

6170 Zirl

Tel: 43-650-555 6175

Email: hht@gmx.at


Website: www.huntington-hilfe-tirol.at

Huntington Hilfe Kärnten

Mrs Gerda Jaritz

Mühlenweg 43/10

9500 Villach

Tel: 43-650-391 4524

And Mrs Christine Guggenberger

Tel: 43-650-542 7217

Email: christina.guggenberger@infincon.com / c1guggen@edu.uni-klu.ac.at

Huntington Hilfe Vorarlberg

Mrs Andrea Amann

Moosmahdstr 4, 6850 Dornbirn

Mobil: 43-664 466 9308

Tel/fax: 43-5572 263 74

Email: club-antenne@utanet.at

Huntington Hilfe Salzburg

Mr Bernhard Gantschnigg

Wasserfallweg 1, 4866 Unterach am Attersee

Tel: 43-66-423 8013; Fax: 43-7665 60090

Email: office@huntington-hilfe-salzburg.at

Website: www.huntington-hilfe-salzburg.at

BELGIUM FLANDERS
HUNTINGTON LIGA

Mrs Beatrice De Schepper

Spelonckvaart 30

9180 MOERBEKE-WAAS, BELGIUM

Tel: 32 – 9 – 346 8991
Email: bea.deschepper@skynet.be


SOCIAL SERVICE

KRIJKELBERG 1, B 3360 BIERBEEK, BELGIUM

tel: 32 - 16   452 759

Email: socialedienst@huntingtonliga.be

Website: www.huntingtonliga.be
BELGIUM WALLONIA

LIGUE HUNTINGTON FRANCOPHONE BELGE


4BIS MONTAGNE STE WALBURGE, 4000 LIEGE, BELGIUM

tel: 32 - 4 - 225 8733; Fax: 32-4-225 8469

Email: info@huntington.be

secretariat.lhfb@skynet.be


Website: www.huntington.be
BRASIL

ASSOCIACAO BRASIL HUNTINGTON


RUA TREZE DE MAIO; 226 CENTRO, CEP 12940.720

ATIBAIA – SAO PAULO, BRASIL

Tel/fax: 55-11- 4412 2199

Email: info@abh.org.br

ivy@abh.org.br

Website: www.abh.org.br

UNIAO DOS PARENTES E AMIGOS DOS DOENTES DE HUNTINGTON


QE 32 CONJUNO N CASA 25 GUARA II, BRASILIA - DF 71065-141, BRASIL

tel/fax: 55-61-30361594

Email: upadh@upadh.org.br

Website: www.upadh.org.br
CANADA

HUNTINGTON SOCIETY OF CANADA


151 FREDERICKSTREET, SUITE 400, N2H 2M2 KITCHENER, ONTARIO, CANADA

tel: 1 - 519   749 7063, fax: 1 - 519 - 749 8965;

Email: info@huntingtonsociety.ca

Website: www.huntingtonsociety.ca

SOCIÉTÉ HUNTINGTON DU QUEBEC


2300 BOULEVARD RENÉ LÉVESQUE O

MONTRÉAL, QUEBEC, H3H 2R5

tel: 514 – 282 4272 ; Fax : 1-514-937 0082

Email: shq@huntingtonqc.org

Website : www.huntingtonqc.org
CHILE

Agrupacion Chilena de Huntington

La Ramada 11694, Las Condes

Santiago, Chile

Tel: 56-9-873 3703/ 56-9-8429 1291

Email executive director Elisabeth Roth: Elisabeth@huntington.cl

President: Rodrigo@huntington.cl

Website: www.huntington.cl
CHINA - HONGKONG (contact)

Ken To

Room 1314, Lung Chu House

Lung Poon Court

Diamond Hill

Kowloon, Hong Kong

Tel: 852 – 9707 1405

Email: kensantoso@gmail.com

COLOMBIA

Asociacion Colombianos por la Enfermedad de Huntington


Calle 130 # 58-20 Lo.286 C.C.

Plaza Aventura, Bogota, Colombia

Tel 57-1-2531293 ; Cel : 57-3-3105599155

Email : acolpeh@gmail.com

Website : www.acolpeh.wix.com

Fundacion Huntington de Colombia

Calle 45 No 50-59 of 101


Bogota DC, Colombia

Tel : 571-2225596

Fax : 571-221 8339

Email : fuhcol@gmail.com

Website : www.fuhcol.blogspot.com



CUBA (CONTACT)

GRUPO MULTIDISCIPLINARIO PARA LA ATENCIÓN A PACIENTES Y FAMILIARES CON DIAGNÓSTICO DE ENFERMEDAD DE HUNTINGTON

JEFA DEPARTAMENTO NEUROGENETICA

INSTITUTO DE NEUROLOGIA Y NEUROCIRURGIA

DR. TATIANA ZALDIVAR VAILLANT

CALLE 29 ESQ D.VEDADO. PLAZA DE LA REVOLUCION

La Habana CUBA

tel: 05307834 55 47

Email: tzv@infomed.sld.cu /

CZECH REPUBLIC

SPOLECNOST PRO POMOC PRI HUNTINGTONOVE CHOROBE

Belobranske nam 6,

53002 Pardubice, CZECH REPUBLIC

Tel/fax: 420 – 724 903 243

Chairman: PharmDr Zdenka Vondrackova

Tel: 420-723-349 327; home 420-491-424 142

Email:; info@huntington.cz

zdenka.vondrackova@seznam.cz

hrudahd@seznam.cz


Website: www.huntington.cz
Mrs Dr Jana Zidovska

PRAZSKA 153, 25241 DOLNI BREZANY, CZE­CH REPUBLIC

Tel: 420 – 737-198841; tel home: 420 – 241-910 454; clinic: 420-224-967 171-2

Email: jana.zidovska@seznam.cz
DENMARK

LANDSFORENINGEN MOD HUNTINGTON SYGDOM


Bystoevneparken 23,, 701; DK-2700 Bronshoj, Denmark

Tel: 45-5320 7850

Email: kontor@huntingtons.dk

Website:www.huntingtons.dk



ECUADOR (CONTACT)

Mrs Maria Cristina Guerra Villacreses

Mindo, Ecuador

Tel: 593-2 2170075; Mobile: 08-551 2091

Email: c.g.villacreses@gmail.com
EGYPT (CONTACT)

MR HANY FARID HALEEM


6 OMRANIASTREET – OMRANIA

GIZA 12211 – CAIRO, Egypt

Tel : 202-3-571 1379

Cellphone : 20212 3972744

Email : hanyfarid612@yahoo.com


Website : www.geocities.com/hdegypt
Dr Bahaa Demian Grace

Kasr Alaini College of Medicine

21 Mourad Street ; apt 11Giza

Cairo, Egypt

Tel : 202-35724344

Mobile : 20 12/3455662

Emergency : 20126734075

Email : drbahaademian@yahoo.com
FINLAND
FINNISH PARKINSON’S DISEASE ASSOCIATION, HUNTINGTON DISEASE BRANCH

REHABILITATION CENTRE SUVITUULI

SUVILINNANTIE 2, POSTBOX 905, 20100 TURKU, FINLAND

tel: 358-2-274 0412/358-2-5274 0421; fax: 358-2-2740 444

Email: arja.pasila@parkinson.fi

Website: www.parkinson.fi

Suomen Huntington Yhdistys ry


TUULENSUUNKATU 2, 20540 TURKU, FINLAND

Tel: 358-5-3764195

Email: heikki.tulento@fimnet.fi

Website : www.huntington.fi
FRANCE

ASSOCIATION HUNTINGTON FRANCE


42, 44 RUE DU CHATEAU DES RENTIERS, 75013 PARIS, FRANCE

Tel: 33   1 - 5360 0879; Fax: 33 - 1- 5360 0899

Email: huntingtonfrance@wanadoo.fr

Website : http://huntington.fr



ASSOCIATION HUNTINGTON AVENIR


Centre d’Affaires

Montbertrand BP 24

38230 CHARVIEU, FRANCE

Tel: 4-7832 0285; Fax: 4-3742 5015

Email: contact@huntingtonavenir.net

mgarcia@huntingtonavenir.net

Website: www.huntingtonavenir.net

GERMANY

DEUTSCHE HUNTINGTON HILFE E.V.

GESCHAEFTS- UND BERATUNGSSTELLE

Falkstrasse 73-77, D 47058

DUISBURG, GERMANY

tel: 49 - 203 - 22915, fax: 49 - 203 - 22925,

Email: dhh@dhh-ev.de

Website: www.dhh-ev.de

www.selbsthilfenetz.de
GREECE
ORGANISATION OF HUNTINGTON IN GREECE

MRS LYDIA VEREMI

HYDRAS 13; 176-76 ATHENS, GREECE

Tel: 1-951 8054; Mobile: 6973517827 or 6946161285

Email: myopas@otenet.gr

lveremi@yahoo.gr
­HUNGARY (CONTACT)

DEPARTMENT OF NEUROLOGY, UNIVERSITY OF SZEGED

PROF LASZLO VECSEI

SEMMELWEIS STR 6, H6725 SZEGED

Tel: +36-62-545351; Fax: +36-62-545 597

Email: vecsei@nepsy.szote.u-szeged.hu
INDIA

HUNTINGTON’S ORGANIZATION


P2-59 DLF QUTUB ENCLAVE PHASE II, GURGAON-122002 HARYANA, INDIA

tel :91-124-4019072, Cell 91-991-0029072 fax: 91 - 124 - 351 945

Email: navnitsingh11@yahoo.com
IRAN (CONTACT)


IRELAND

HUNTINGTON DISEASE ASSOCIATION OF IRELAND


CARMICHAEL CENTRE, NORTH BRUNSWICKSTREET, DUBLIN 7, IRELAND

tel: 353 - 1   872 1303,

Email: hdai@indigo.ie

Website: www.huntingtons.ie



ISRAEL

ISRAELI HD Association


3 LUBEZKYSTREET, GEDERA 70700, ISRAEL

tel: 972 - 8 - 859 8573, fax: 972-8-8598573 , Cell 0528384889

Email: niradn@012.net.il

Website: www.huntington.org.il

ITALY

ASSOCIAZIONE ITALIANA COREA DI HUNTINGTON-MILANO


C/o Instituto Auxologico Italiano IRCCS

Via A. Magnasco 2-20149 Milano, Italy

tel: 39 -02 – 619 112 618

Email: segreteriaaichmilano@libero.it

Website: www.aichmilano.it

ASSOCIAZIONE ITALIANA COREA DI HUNTINGTON-ROMA ONLUS


VIA NOMENTANA 56, 00161 ROMA, ITALY

Tel: 39-06-44242033/39-06-44252298; Fax: 39-06-44242033

Email : info@aichroma.com ;

paolazinzi@yahoo.com

wanda.danzi@aichroma.com

Website: www.aichroma.com

Website: www.newshd.net

ASSOCIAZIONE ITALIANA COREA DI HUNTINGTON - NAPOLI


POLICLINIO FEDERICO II, CLINICA NEUROLOGICA - ED17

VIA PANSINI 5, 80131 NAPOLI, ITALY

tel: 39-081-5455 213/39-338-8008 372; fax: 39-081-7462 693

Email: aichnit@yahoo.it

Website: via Orphanet

ASSOCIAZIONE ITALIANA COREA DI HUNTINGTON – NEUROMED


VIA ATINENSE 18, 86077 POZZILLI (IS), ITALY

Tel: 00390865-915238; 0039347-3132185; Fax: 00390865-927575

Email : aich.neuromed@yahoo.it / neurogen@neuromed.it

ASSOCIAZIONE ITALIANA HUNTINGTON EMILIA ROMAGNA – AIHER


Mr Antonio Fontana

Via Romea n 1140, 47522 Cesena, Italy

Email : info@aiher.it; antofnt@gmail.com

Website : www.aiher.it

JAPAN

JAPANESE HUNTINGTON’S DISEASE NETWORK


C/O MRS KAORI MUTO PH.D

3-1-1 ASAHI, MATSUMOTO, NAGANO 390-8621, JAPAN

Tel/Fax: 81 – 263-37-2369

Email : jhdn@mbd.nifty.com

Website: www.jhdn.org

MALTA

HUNTINGTON SUPPORT GROUP MALTA (Delete, does not exist anymore)


4 Lion Street, Floriana, MALTA G.C.

tel: 356   9949 3267;

Email: pengland@onvol.net

MALTESE HUNTINGTON DISEASE ASSOCIATION



Dept of Anatomy, University of Malta

Msida, Malta

Tel : 356 – 9989 4108 ; Fax : 356 – 213 9527

Email : cutajarhector@gmail.com / bedlam75@msn.com

Website : http://maltesehda.blogspot.com
MEXICO

ASOCIACION MEXICANA DE LA ENFERMEDAD DE HUNTINGTON I.A.P.

TESORELOS 97, TORIELLO GUERRA DEL. TLALPAN, 14050 MEXICO CITY, MEXICO

tel: 52 - 5424 3325; fax: 52 - 5424 3189

Email: asocia@prodigy.net.mx

NETHERLANDS

VERENIGING VAN HUNTINGTON


POSTBOX 30470,­ 2500 GL DEN HAAG, NETHER­LANDS

tel: 31 - 70 - 314 8888 ; fax: 31 - 70 - 314 8880,

Email: info@huntington.nl

Website: www.huntington.nl
NEW ZEALAND

HUNTINGTON'S DISEASE ASSOCIATION (AUCKLAND) NEW ZEALAND


NEUROLOGICAL SUPPORT CENTRE

7a TAYLORS ROAD

MORNINGSIDE, AUCKLAND or

PO BOX 16238

SANDRINGHAM, AUCKLAND

New Zealand

Email; huntingtonsakld@xtra.co.nz; jane.had@xtra.co.nz

Website: www.huntingtons.org.nz

HUNTINGTON’S DISEASE ASSOCIATION (CHRISTCHURCH) NEW ZEALAND


CHIRSTCHURCH COMMUNITY HOUSE

141 HEREFORD STREET

CHRISTCHURCH, NEW ZEALAND

Tel: 3-312 5612

Email: ddc2@clear.net.nz
HUNTINGTON’S DISEASE ASSOCIATION (WELLINGTON) NEW ZEALAND

POSTBOX 30420

LOWER HUTT 5040, NEW ZEALAND

Tel: 4-569 3252

Email: jwigginswellingtonhda@hotmail.com

Info.Wellingtonhda@xtra.co.nz
NORTHERN IRELAND

HUNTINGTON’S DISEASE ASSOCIATION OF NORTHERN IRELAND


74 Lisburn Rd

Belfast BT28 1TS

Northern Ireland

Tel: 44 – 28 - 92670768

Email: info@hdani.org.uk

Website: www.hdani.org.uk



NORWAY

LANDSFORENINGEN FOR HUNTINGTON'S SYKDOM


Grimsvollen 29, 4616 Kristiansand, Norway

tel: 47 – 902 - 02031, 934-47-795/9020204

Email: leder@huntington.no

Website: www.huntington.no





PAKISTAN

HUNTINGTON DISEASE CARE & CURE SOCIETY OF PAKISTAN


2 SAWATI GATE, PESHAWAR CANTT, PAKISTAN

tel: 92 - 91 – 528 7855

Email: hdccs@brain.net.pk

PAKISTAN HUNTINGTON DISEASE SOCIETY


SHIFA MATERNITY HOSPITAL

ZARYAB ROAD, ZARYAB COLONY, FAQIRABAD NO.2

25000 PESHAWAR, PAKISTAN

Tel: 00-92-912248747; Mobile: 00-92-3009397700

Email: dr_mussarat@hotmail.com
PERU (CONTACT)

DR MIRIAM VELEZ

PROLONGACION

265 CUSCO 265, 32 SAN MIGUEL, LIMA, PERU

Tel: 51-1-328 0504; tel/fax home: 51-1-263 5571

Email: miriamev@yahoo.com



HUNTINGTON SOCIETY OF PERU

MRS Maria Begazo Viza

Arequipa, Peru

Tel: 51-54-245 982; Fax: 51-54-211 1712

Email: mbegazo8@LatinMail.com
POLAND

POLSKIE STOWARZYSZENIE CHOROBY HUNTINGTONA

Rekodzielnicza 17a, 02-267 Warsaw, Poland


Tel : 48-22-8464151

Email : kontakt@huntington.pl / d.lis@huntington.pl


Email chairman everywhere : d.lis@dana.com.pl

Website: www.huntington.pl



MRS DR DOROTA HOFFMAN-ZACHARSKA /

Email: dhoffman@poczta.wp.pl
Portugal

ASSOCIACAO PORTUGUESA DE DOENTES DE HUNTINGTON (APDH)


Dr Filipa Julio

IBILI – Azinhaga de Sta.Comba

3000-354 Coimbra, Portugal

Tel: 351-96-252 3161

Email/ filipasjulio@hotmail.com

huntington.coimbra@hotmail.com

Website: www.huntington-portugal.com
Mrs Ursula Kleibrink

Rua Dr. Afonso Costa 32L

8500-016 Alvor-Portimao

Tel: 00-351-282459331; Mbl: 927 176 955

Email: Huntington.portimao@gmail.com

Website: www.huntington-portugal.com
CENTRO DE INFORMACAO DE LISBOA

Pc. Antonio Baiao 7, loja A

1500-567 Lisboa, Portugal

tel/fax: 351-21-770 0014
ROMANIA (CONTACT)

DR FLORIAN ALEXANDRU & MARIA MAGDALENA OBRETIN

SPERANTEI 27. AP 2, BUCURESTI. ROMANIA

Tel: 40-722 - 789 868, Fax: 40 – 318 - 056733

Email: obretin@gmail.com




RUSSIA

HUNTINGTON ASSOCIATION OF RUSSIA


DR SERGEY A. KLYUSHNIKOV

INST OF NEUROLOGY, DEPT OF NEUROGENETICS, RUSSIAN ACADEMY OF MEDICAL SCIENCES

VOLOKOLAMSKOYE SHOSSE 80, 125367 MOSCOW, RUSSIA

tel: 7 - 95   490 2221, fax: 7 - 95 - 490 2210

Email: sergeklyush@gmail.com

SCOTLAND

SCOTTISH HUNTINGTON'S ASSOCIATION


St James Business Centre, Suite 135

Linwood Road, Paisley, PA3 3AT

Tel: 141-848 0308; Fax: 141 – 997 6199

Email: sha-admin@hdscotland.org

Website: www.hdscotland.org
SERBIA (contact)

Mr Zoran Simonovic

Psihosocijalni savetnik

Blagoja Parovica BB

37000 Krusevac, Srbija,

Serbia

Tel:+38137410217;fax: +38137410103;mob:+38162209006

Email: zoran.simonovic@gmail.com
SLOVAKIA

SPOLECNOST PRE POMOC PRI HUNTINGTONOVEJ CHOROBE V SLOVENSKEJ REPUBLIKE

Mrs Jana Pavlikova

Klokocova 737, 98101 Hnust´a

Slovakia

Tel : 0475-423856 ; 09-15800155

Email : huntington@slovanet.sk

Website : www.sphch.sk
SLOVENIA

HUNTINGTON ASSOCIATION OF SLOVENIA


VRHOVCEVA 13d, LOG PRI BREZOVICI 1358, SLOVENIA

Tel: 386-1-7566020; mobile: 386-40397289

Fax: 386-1-5603086

Email: ako9@siol.com

jan.kobal@kclj.si

SOUTH AFRICA

HUNTINGTON'S ASSOCIATION OF SOUTH AFRICA


181 JOHANNESSTREET, FAIRLAND,2170 SOUTH AFRICA

Tel : 27-11-678 6265 ; Mbl 1 : 27-83 383 1188 ; Mbl 2 : 27-82 318 3330

Email: michaelh@tsdworld.co.za ; jessica_selfe@yahoo.co.uk

Website: www.huntingtons.org.za


HUNTINGTON’S UNITED GROUP SOUTH AFRICA

MRS TINA-MARIE WESSELS

GENETIC COUNSELLING CLINIC

UNIVERSITY OF THE WITWATERSRAND & THE NATIONAL HEALTH LABORATORY SERVICE

POSTBOX 1038

JOHANNESBURG 2000

Tel: 11 – 4899223/4/9243; Fax: 11 – 489 9226

Email: tina-marie.wessels@nhls.ac.za / tinamariewessels@gmail.com


Website: www.ahls.ac.za / http://web.wits.ac.za/academic.health/pathology
SOUTH KOREA (CONTACT)

DR. MANHO KIM

DEPT OF NEUROLOGY, SEOUL NATIONAL UNIVERSITY HOSPITAL

101 Daehakro, CHONGNOKU

SEOUL 110-744, SOUTH KOREA

Tel: 82-2-2072 2193; fax: 82-2-3672 7553

Email: kimmanho@snu.ac.kr

MR WOOSEOK IN

DEPT OF NEUROLOGY, SEOUL NATIONAL UNIVERSITY HOSPITAL

28 YONGGONDONG Chongnoku

Seoul 110-744, South Korea

Tel: 82-2-2072 0890; fax: 82-2-7625178

Email: spon13@gmail.com
SPAIN

ASOCIACION DE COREA DE HUNTINGTON ESPANOLA


C/Gran via No 59, 4 planta

28013 Madrid, Spain

tel: 615-98 48 58

Email: info@e-huntington.org

ache-consultas@hotmail.com

Website: www.e-huntington.org
Asociacion Pacientes Enfermedad Huntington (APEHUCA) (Contact)

Catorce de abril 85

CP 11510 Puerto Real (Cadiz), Spain

Tel: 34 – 679 – 897158 / fax: 956 25 8755

Email: apehuca@hotmail.com

apehucasecretaria@hotmail.com



SURINAM (Contact)

Mr. Dick Ijskes

Pobox 871

Paramaribo, Surinam

Tel: 597-464036; Celulair: 597-8818681

Email: d.yskes@sr.net



SWEDEN

HUNTINGTON FORENINGEN I SVERIGE

C/O NHR, Fia Gunnarsson

POSTBOX 490 84, 100 28 STOCKHOLM, SWEDEN


tel: 46 - 8 - 677 7010; fax: 46 - 8 - 24 1 315

Email: nhr@nhr.se

fgu@nhr.se

Website: www.nhr.se

Mrs Therese Persson


Angavangsgatan 18

Angelholm 0 26241. Sweden

Tel: 46-10 458 8131

Email: Huntington.nu@hotmail.com

Webiste: www.huntington.nu
Riksfarbundet Huntingtons Sjukdom (RHS)

Mr Sture Andersson

Bunkeflo Strand, Sweden

Tel: 46-40-157505 / 46-733-563452

Email: sture.a@tele2.se

Website: www.huntington.se
SWITZERLAND

SCHWEIZERISCHE HUNTINGTON VEREINIGUNG


Feldguetliweg 75

8706 Feldmeilen, Switzerland

Tel: 41-79 – 627 3324

Email: info@shv.ch

Website: www.shv.ch

www.huntington.ch
TURKEY

TURKISH HUNTINGTON SOCIETY


PROF A. NAZLI BASAK

BOGAZICI UNIVERSITY, DEPT OF MOLECULAR BIOLOGY & GENETICS

80815 BEBEK - ISTANBUL, TURKEY

tel: + 90 - 212 – 359 6679; fax: + 90 - 212 – 3597298

Email: basak@boun.edu.tr

Website/ www.alsturkiye.org / http://ndal.boun.edu.tr
UNITED KINGDOM

HUNTINGTON'S DISEASE ASSOCIATION


Suite 24 Liverpool Science Park

Innovation Centre 1

131 Mount Pleasant

L3 5TF Liverpool

Tel: 44-151-331 5444; Fax: 44 – 151-331 5441

United Kingdom

Email: info@hda.org.uk

Website: http://www.hda.org.uk
UNITED STATES OF AMERICA

HUNTINGTON'S DISEASE SOCIETY OF AMERICA

505 Eight Avenue, Suite 902, NEW YORK NY 10018, USA

tel: 1 - 212   242 1968, fax: 1 - 212 - 239 3430

Email: lvetter@hdsa.org

hdsainfo@hdsa.org

Website: http://www.hdsa.org
URUGUAY (CONTACT)

MRS MONTSERRAT MARTINEZ

YARO 1038, AP 2, CP 11200 MONTEVIDEO, URUGUAY

Tel: 5982-409 8234; Fax: 5982-401 3918

Email: montsemora1954@yahoo.com ; lamonse@adinet.com.uy
VENEZUELA
ASOCIACION VENEZOLANA DE HUNTINGTON

MRS ALESKA GONZALEZ DE ZAMBRANO

Av Principal de Colinas de Bello Monte

Calle Voltaire, Edificio-Palpoc, piso4, Apt 41, Parroquia el Recreo

1050 D.C. Caracas, Venezuela

Tel: +58-212-7517 654; Fax: +58-261 5011

Email: avehun@hotmail.com

Website : http://avehun-venezuela.webnode.com.ve

DR ROBERTO WEISER

HOSPITAL UNIVERSITARIO DE CARACAS

POSTBOX 80207, 1080 CARACAS, VENEZUELA

tel: 58 - 2 - 991 5731; fax: 58 -2 - 979 0453

Email: rweiser@cantv.net
YUGOSLAVIA (contact)

PROF VLADIMIR S. KOSTIC

INST OF NEUROLOGY CCS

UL.DR SUBOTICA 6

11000 BELGRADE, YUGOSLAVIA

Tel: 381-11-685 596; Fax: 381-11-684 577

Email: kostic@imi.bg.ac.yu



ZIMBABWE (CONTACT)

MR. MANU PRAJAPATI

13/23 RD AVE, FAMONA BULAWAYO, ZIMBABWE

Tel: 263-9-64470; Fax: 263-9-883067

Email: unampraja@ymail.com




OTHER COUNTRIES

GERRIT R. DOMMERHOLT

CALLUNAHOF 8, 7217 ST HARFSEN, NETHERLANDS

tel: 31 - 573 - 431595, 31-573-431719

Email: iha@huntington-assoc.com
ORGANISATIONS
HEREDITARY DISEASE FOUNDATION

3960 Broadway, 6th floor. New York – NY 10032, USA

Tel: 212-928 2121

Email: cures@hdfoundation.org

Website: http://www.hdfoundation.org
INTERNATIONAL HUNTINGTON ASSOCIATION (IHA)

OFFICE MANAGER

GERRIT R. DOMMERHOLT

CALLUNAHOF 8, 7217 ST HARFSEN, NETHERLANDS

tel: 31 - 573 – 431595

Email: iha@huntington-assoc.com

Website: www.huntington-assoc.com


ALLIANCE OF GENETIC SUPPORT GROUPS

35 WISCONSIN CIRCLE, SUITE 440, CHEVY CHASE, MD 20815-7015, USA

tel: 1 - 301 - 652 5553

Email: alliance@capaccess.org
WE MOVE

WORLDWIDE EDUCATION AND AWARENESS FOR MOVEMENT DISORDERS

ONE GUSTAVE L.LEVY PLACE, BOX 1052, NEW YORK, NY 10029, USA

tel: 1 - 212 - 241 8567

Email: wemove@wemove.org
EFNA

EUROPEAN FEDERATION OF NEUROLOGICAL ASSOCIATIONS

VIALE PIERACCINI 6, FIRENZE 50139, ITALY

tel: 39-055-4362 098; fax: 39-055-4271 280

Email: efns-branch@pharm.unifi.it

EURORDIS

EUROPEAN ORGANIZATION FOR RARE DISORDERS

102 Rue Didot, 75014 PARIS, FRANCE

tel: 33 - 1 - 4416 2747; fax: 33 - 1 - 4416 2712

Email: eurordis@eurordis.org

Website: www.eurordis.org

European Huntington Association


SEE BELGIUM: MS Bea de Schepper

Euro-HD Network


Tel: +49-731-500 50951

Email: info@euro-hd.net

Website: www.euro-hd.net

World Federation of Neurology Research Group on Huntington Disease


Prof R.A.C.Roos

Email: r.a.c.roos.neurology@lumc.nl

Website: www.wfneurology.org

Huntington Study Group


Tel: +1-310-450 9913

Email: hsgwebmaster@ctcc.rochester.edu

Website: www.huntington-study-group.org

The Huntington Project


Tel: +1-585-273 4147

Email: leslie.briner@ctcc.rochester.edu

Website: www.huntingtonproject.org

WORLDCONGRESS ON HUNTINGTON DISEASE


www.wchd2013.com

Huntington Disease Drug Works


www.hddrugworks.org

Huntington Disease Lighthouse


www.hdlighthouse.org

Huntington Disease Advocacy Center


www.hdac.org

HD Free with PGD


www.hdfreewithpgd.com
Huntington Disease Youth Organization (HDYO)

www.hdyo.org

info@hdyo.org
HDBUZZ

www.hdbuzz.net
Red Latinoamericana de Huntington

C/o Rodrigo Osorio

rosorio@rlah.net

Taise Cadore = tcadore@rlah.net


IHA BOARD



President: Ms Ann Jones

Email: annjones@aapt.net.au
Vice-President: Ms Asuncion Martinez

Email: asun@euro-hd.net
Treaurer: Ms Marie-Odile Perrousseaux

Email: odile.perrousseaux@orange.fr
Secretary: Ms Louise Vetter

Email: lvetter@hdsa.org
International Development Officers

Ms Christiane Lohkamp

Email: chris.lohkamp@dhh-ev.de
Ms Bea De Schepper

Email: bea.deschepper@skynet.be
Members at Large:

Ms Bev Heim-Myers

Email: bheimmyers@huntingtonsociety.ca
Mr Gerrit Dommerholt

Email: iha@huntington-assoc.com
Ms Danuta Lis

Email: d.lis@dana.com.pt
Mr Matt Ellison

Email: just1moreperson@yahoo.com
Ms Filipa Julio

Email: Huntington.coimbra@hotmail.com
2-1-2013



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